The Tick-Borne Disease Working Group was established by the 21st Century Cures Act to improve federal coordination of efforts related to tick-borne diseases. Members will review all U.S. Department of Health and Human Services efforts related to tick-borne diseases to provide expertise and help ensure interagency coordination and minimize overlap, examine research priorities and identify unmet needs.

17 July 2018

The seventh meeting of the Tick-borne Disease Working Group will be held on July 24, 2018, from 10:00 a.m. to 4:00 p.m. EDT. The Working Group will review and vote on the content of the five chapters that will be submitted into the Working Group Congressional Report. Please Note: If you would like to receive a copy of the draft chapters, please submit a request to This email address is being protected from spambots. You need JavaScript enabled to view it.. The meeting materials will be emailed to you prior to the meeting. We encourage you to register exit disclaimer icon for the meeting.

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17 June 2018

From HHS.gov - The sixth meeting of the Tick-borne Disease Working Group will be from 9:30 a.m. to 6:30 p.m. (Eastern) on June 21. The Working Group will focus on consensus of the six subcommittee findings and determine the major content of the five chapters that will be submitted into the Working Group Congressional Report. Note: If you would like to receive a copy of the draft chapters, please submit a request to This email address is being protected from spambots. You need JavaScript enabled to view it.. The document will be emailed to you prior to the meeting. We encourage you to register for the on-line meeting, where you can indicate if you would like to provide verbal and/or written public comment and receive updates about the Working Group. Members of the public can attend the meeting via webcast.  You must sign-up  to watch the live webcast.

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15 May 2018

The Tick-Borne Disease Working Group (Working Group) is required to submit a report on its activities and any recommendations to the HHS Secretary and Congress every two years. The first report is due December 2018.  The six subcommittees of the Working Group prepared reports to inform the Working Group and its 14 voting members. These reports offer insights into gaps, opportunities and potentials actions to be considered by the Working Group for the report to Congress and HHS Secretary. 

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06 May 2018

kristenhoney presentation loHundreds of people came out to hear about Lyme disease at the 4th Annual Midcoast Lyme Disease Support & Education Conference in Augusta, Maine, on April 28th, 2018. Over thirty experts spoke, including LDA President Pat Smith, Drs. Brian Fallon, Neil Spector, Lee Cowden and Kristen Honey, PhD, PMP, Vice Chair of the HHS Tick-Borne Disease Working Group. Dr. Honey is also a Lyme survivor. Her presentation titled Lyme Innovation, provided an overview of the TBD Working group-- it's background, responsibilities, including details of operation, reporting and timelines. Click here to view slide presentation

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03 May 2018

Bob SabatinoRobert Sabatino, Founder and Executive Director of Lyme Society Inc., was named a public member of the Tick-Borne Disease Working Group. Lyme Society is the New York affiliate partner of Lyme Disease Association. As a patient and advocate, he continues to contribute to legislation, education, and awareness. From his own perspective as a patient, his focus is on the life and struggles of patients and treatments in society today. He retired from the New York Police Department that specialized in Drug Enforcement, Addiction Services, Community Outreach and Domestic Violence Awareness.

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