This section on Federal Legislation contains Lyme disease bill actions in Congress from the 2007-2008 legislative session to the present 2014-2015 legislative session.

To see information on the bills in a particular session of Congress, click on the links in the left hand menu, e.g., click Legislative Session 2014-2015 to read about current bills in Congress.

The Lyme Disease Association (LDA) has been working to try to stop the spread of Lyme disease and find a cure for chronic Lyme disease for almost two decades. LDA has worked on educating federal departments and agencies, meeting with Health & Human Services, the Centers for Disease Control & Prevention, the National Institutes of Health as well as with the military.

Additionally, LDA has worked with members of Congress over that time period and has been successful in helping to achieve Labor HHS appropriations language and funding and Department of Defense funding for Lyme and tick-borne diseases. LDA has also been an impetus for bills introduced into Congress on Lyme and tick-borne diseases which had their genesis in 1997. The LDA has also testified on Lyme disease before the US House of Representatives Foreign Relations Health & Human Rights Subcommittee and the US House of Representatives Energy & Commerce Health Subcommittee, 2012 and 2013 respectively.


20 December 2016

2016 president obama official portrait loDecember 13, 2016, President Obama signed the 21st Century Cures Act into law. This law has provisions for many diseases, including creating a Working Group for tick-borne diseases. "This is a sweet victory for Lyme patients whose plight has been ignored for decades. They will have an opportunity to sit at the table in Washington, DC, and to provide their input into how significant government research needs to focus on understanding the mechanisms of persistent symptoms...

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07 December 2016

Patients Will Have a Seat On the Tick-Borne Diseases Working Group

The US Senate passed the 21st Century Cures bill which included Lyme language. After days of discussion on the Senate floor about numerous provisos in the huge health care initiative, and stalling on the floor, a vote was called for and the Senate amendment including Lyme passed 94-5. The five Senators who voted no on the Cures Act are Sanders (I), Wyden (D), Merkley (D), Lee (R), Warren (D).

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06 December 2016

Update: Senate to continue consideration of its version of "21st Century Cures" legislation beginning 9:30am December 7. Go to to watch proceedings.

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01 December 2016

Smith HeadWith the help of Rep. Chris Smith and a Wall advocate, the House passed breakthrough legislation on the hot-button issue. For decades, Wall resident Pat Smith has implored the medical establishment to acknowledge the existence of chronic Lyme disease. On Wednesday, her quest took a big step forward. The House of Representatives passed the 21st Century Cures Act, a comprehensive health care bill that would establish a national working group on Lyme disease. The 14-member panel would include physicians with experience in treating tick-borne diseases, Lyme patients and advocates for those suffering from the condition. (Asbury Park Press 12/1/16, Jerry Carino)

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29 November 2016

The passage of the amendment to 21st Century Cures Act by the House is a big step forward for the Lyme community. Unfortunately, there are many misconceptions, half-truths, and outright fabrications surrounding it and its passage. The facts are, like it or not, the government agencies do oversee and control different areas of our life, including health care. CDC and NIH under Health & Human Services are the 2 agencies we are usually concerned about.

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01 December 2016

Update: Bill with Lyme language passes House, 392-26! (Click on Left Video)

November 30, 2016 Lyme community leaders are pleased to announce that language on tick-borne diseases (TBD) will be included in the 21st Century Cures Act (the House Amendment to Senate Amendment to HR 34). The inclusion of this language was achieved after 2 days of intense negotiations with Congressional offices. The language will be included in the House version of the bill which is expected to pass easily due to its broad bipartisan support. The signatories listed below mutually agreed upon the new TBD language that will now be included in the bill.

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Lyme Disease Association, Inc.
PO Box 1438, Jackson, NJ 08527 

888-366-6611 | information line
732-938-7215 | fax | email

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