20 December 2016

2016 president obama official portrait loDecember 13, 2016, President Obama signed the 21st Century Cures Act into law. This law has provisions for many diseases, including creating a Working Group for tick-borne diseases. "This is a sweet victory for Lyme patients whose plight has been ignored for decades. They will have an opportunity to sit at the table in Washington, DC, and to provide their input into how significant government research needs to focus on understanding the mechanisms of persistent symptoms...

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07 December 2016

Patients Will Have a Seat On the Tick-Borne Diseases Working Group

The US Senate passed the 21st Century Cures bill which included Lyme language. After days of discussion on the Senate floor about numerous provisos in the huge health care initiative, and stalling on the floor, a vote was called for and the Senate amendment including Lyme passed 94-5. The five Senators who voted no on the Cures Act are Sanders (I), Wyden (D), Merkley (D), Lee (R), Warren (D).

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06 December 2016

Update: Senate to continue consideration of its version of "21st Century Cures" legislation beginning 9:30am December 7. Go to senate.gov to watch proceedings.

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01 December 2016

Smith HeadWith the help of Rep. Chris Smith and a Wall advocate, the House passed breakthrough legislation on the hot-button issue. For decades, Wall resident Pat Smith has implored the medical establishment to acknowledge the existence of chronic Lyme disease. On Wednesday, her quest took a big step forward. The House of Representatives passed the 21st Century Cures Act, a comprehensive health care bill that would establish a national working group on Lyme disease. The 14-member panel would include physicians with experience in treating tick-borne diseases, Lyme patients and advocates for those suffering from the condition. (Asbury Park Press 12/1/16, Jerry Carino)

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29 November 2016

The passage of the amendment to 21st Century Cures Act by the House is a big step forward for the Lyme community. Unfortunately, there are many misconceptions, half-truths, and outright fabrications surrounding it and its passage. The facts are, like it or not, the government agencies do oversee and control different areas of our life, including health care. CDC and NIH under Health & Human Services are the 2 agencies we are usually concerned about.

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Lyme Disease Association, Inc.
PO Box 1438, Jackson, NJ 08527 

888-366-6611 | information line
732-938-7215 | fax
LDA@LymeDiseaseAssociation.org | email

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