Welcome to the Lyme Disease Association Website

Lyme Disease Funding | Treatment Guidelines | Symptoms

Lyme Disease Association was founded in 1991 with the mission to increase nationwide funding and awareness about Lyme and tick-borne diseases. On this site you will find information regarding Lyme disease symptoms, Lyme disease treatments and other Lyme resources and educational materials for patients, medical professionals, researchers, educators, and policy makers.

Our Lyme doctor referral database can help put you in touch with medical professionals who specialize in diagnosing and treating Lyme disease in your area. You can find out how to help our efforts to enable legislation which promotes scientific research to study Lyme disease and to find a cure, and see what grants we have awarded to researchers to move the field forward. Over the years, our work has been instrumental in helping the fight against Lyme disease, and we could not do it without your generous support.

11 May 2018

2018 LymeSociety conference loLyme Society, Inc. First Annual Lyme and Tick-Borne Disease Conference. Free to the public. Speakers include Dr. Kenneth Liegner, Pat Smith of Lyme Disease Association, Inc., Dr. Brian Fallon, Dr. Robert Bransfield. Dr. Ernest Visconti will be at Q&A, and Bob Sabatino, founder and director of Lyme Society, Inc. will be moderator. Saturday, May 12, 2018. 8:30am - 4pm. Hampton Inn and Suites Staten Island. 1120 South Avenue, Staten Island, New York 10314

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02 May 2018

2018 05 SchumerPC 1 MedUS Senator Chuck Schumer (NY) , Senate Minority Leader, invited LDA President Pat Smith to speak at a press conference he hosted in Woodbury, NY on May 2, 2018. The focus of the conference was to ensure that government monies on Lyme and tick-borne diseases reach those officials at the state and local level who can best ensure the monies are used to help fight tick-borne diseases. Remarks by Patricia Smith, President Lyme Disease Association, Inc.: Lyme, the most prevalent vector-borne disease in the US, is found in over 80 countries worldwide. CDC indicates that only 10% of Lyme cases are reported, thus in 2016 alone, 360,000+ new cases of Lyme disease probably occurred in the US.

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23 April 2018
LDA NEWS & UPDATES 
April 2018
Longhorned Ticks Survived the NJ Winter: Invasive Species May Be Established
The Lyme Disease Association reports that on April 17, 2018, a new tick species to the U.S. has been confirmed by the National Veterinary Services Laboratory to have wintered over in NJ, and it may now be an established species.  Haemaphysalis longicornis, aka longhorned or bush tick, was confirmed in Hunterdon County, NJ, on November 9, 2017 and a mystery still surrounds its appearance. Initial ID was done by Rutgers University Center for Vector Biology and Hunterdon Co. Department of Health. The animals and property on which the ticks were found were treated to eliminate the tick last year, but the effort was apparently unsuccessful. Wildlife surveillance in the area is continuing to determine if the ticks have spread beyond that area. This tick from East Asia is a serious problem for livestock, particularly in New Zealand, as well as to pets and humans. The tick is dark brown and grows to pea size when fully engorged. 
According to James L. Occi, PhD (in progress), Center for Vector Biology, Department of Entomology, Rutgers, also a Scientific Advisory Board Member for the Lyme Disease Association, Inc., dragging for the ticks was not successful so they used CO2 traps to lure the ticks. Problematic is that “the scientists with the most experience with this tick are in parts of Asia, Australia, and New Zealand.”
Photo: Nymphs scapularis on left, longicornis on right. Thanks to J. Occi, Rutgers
New Federal Monies & Important Directives Targeting Lyme & Tick-Borne Diseases
The Consolidated Appropriations Act, 2018, signed into law on March 23, 2018 (Public Law 115-141), funds the Federal government through Sept. 30, 2018. It includes increased funding of $12.2 million for CDC’s vector-borne diseases activities and an increase of $353.6 million for the National Institutes of Allergy & Infectious Diseases, NIAID, which is the NIH Institute that funds Lyme disease research, influenza, and other infectious diseases. Each individual appropriations bill that passed either the House or Senate Appropriations Committee has a committee report that provides explanations of Congressional intent and directions to agencies in expending appropriated funds, such as referenced below. 
The Lyme Disease Association, Inc., LDA, worked with the office of Congressman Chris Smith (NJ) in developing several provisions that were included in the appropriate committee report, i.e., H. Report 115-244. Those provisions included: ensuring transparency, input from treating physicians and representation of the broad spectrum of scientific viewpoints in CDC’s physician education program for Lyme disease; a written rationale for treatment guidelines included on CDC’s website; research that will increase understanding of full range of Lyme disease processes and physiology of Borrelia burgdorferi and B. mayonii, including mechanisms of persistence; development of more sensitive and accurate diagnostics for Lyme and other TBD, including next generation PCR and new methodologies, such as omics; a bibliography of peer-reviewed TBD literature to include literature on possible mechanisms of persistent Borrelia infection. Other groups also provided input to report language.
Photo: Congressman Chris Smith & Pat Smith, LDA Pres.
TBD Working Group: May 10 Meeting & Subcommittee Co-Chair Appointment
The Department of Health and Human Services (HHS) announces the fourth “on-line” meeting of the Tick-Borne Disease Working Group on May 10, 2018, from 8:30 a.m. to 6:45 p.m., Eastern Time. This is an on-line meeting that is open to the public.
Paula Jackson Jones, President of the Midcoast Lyme Disease Support and Education, Maine, was named co-chair of the Access to Care Services and Support to Patients Subcommittee.
Has your Congressman Joined the US House Lyme Caucus? Check Here
Lyme patients need help. The House Lyme Disease Caucus can provide us with the backing we need in DC to get things done. Let’s get our Congressmen in the US House of Representatives to sign up. It is a bi-partisan group, under the leadership of Congressmen Chris Smith (NJ) and co-chair Colin Peterson (MN), working together in Congress to take action on Lyme & tick-borne diseases.
Photo: Pat Smith, President & Rich Smith, Vice President of the LDA in Wall, NJ, with Congressman Chris Smith, Co-Chair of the House Lyme Caucus, discussing what actions can be taken in DC to help those with Lyme and to stop the spread of Lyme & other tick-borne diseases, 4/19/2017
Post Your State Lyme Awareness Proclamations Here
Many states and counties have taken steps to raise awareness regarding Lyme and tick-borne diseases. Declaring "May Lyme Awareness Month" is one move to help remind people spring is here, ticks are out, prevention & proper education are your best tools to staying healthy.
Proclamations are issued by governors and resolutions are adopted by the legislature. 
UMD Research Isolates Bb Protein that Disables Immune System
University of Maryland researcher,   Dr. Utpal Pal, Professor in Veterinary Medicine, has uncovered a mechanism by which the bacteria that causes Lyme disease persists in the body and fights your early, innate immune responses. 
NYS Senator Seward Calls for Study of Link Between Lyme & Mental Health
The senate unanimously passed legislation (S.7171) co-sponsored by Senator Seward that would require the state to study the link between infectious diseases, blood-borne pathogens and mental illnesses.
4th Annual Midcoast Lyme Disease Support & Education Conference, Maine
Saturday, April 28th 8am-5pm
Supported by an educational grant from Lyme Disease Association, Inc.
ADMISSION is FREE AND OPEN TO THE PUBLIC.
Click our calendar icon to view May Awareness events hosted by LDA's partners, members of LDAnet, LDA's umbrella organization.
Colorado Tick-Borne Disease Awareness Association - Lyme & Other Tick-Borne Diseases: 3rd Rocky Mountain Forum , May 19
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21 April 2018

2018 occi scapularis and longicornis ticksThe Lyme Disease Association reports that on April 17, 2018, a new tick species to the U.S. has been confirmed by the National Veterinary Services Laboratory to have wintered over in NJ, and it may now be an established species. Haemaphysalis longicornis, aka longhorned or bush tick, was confirmed in Hunterdon County, NJ, on November 9, 2017 and a mystery still surrounds its appearance. Initial ID was done by Rutgers University Center for Vector Biology and Hunterdon Co. Department of Health.

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21 April 2018

2015 Chris Smith and Pat SmithThe Consolidated Appropriations Act, 2018, signed into law on March 23, 2018 (Public Law 115-141), funds the Federal government through Sept. 30, 2018. It includes increased funding of $12.2 million for CDC’s vector-borne diseases activities and an increase of $353.6 million for the National Institutes of Allergy & Infectious Diseases, NIAID, which is the NIH Institute that funds Lyme disease research, influenza, and other infectious diseases.

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20 April 2018

2017 ChrisSmith Pat Rich House LymeCaucus loMay is Lyme Disease Awareness Month. Let’s get our Representatives in the US House of Representatives to sign up for the House Lyme Caucus. It is a bi-partisan group working together in Congress to take action on Lyme & tick-borne diseases. Under the leadership of Congressmen Chris Smith (NJ) and co-chair Colin Peterson (MN), it has initiated letters and actions to benefit Lyme patients, such as the inclusion of the monies for Lyme & tick-borne diseases into the Congressionally Directed Medical Research Program (CDMRP) and language and Lyme monies into Appropriations over the years and initiated favorable legislation. Additionally, it has queried government agencies...

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20 April 2018

NGC headerApril 16, 2018 - The AHRQ National Guideline Clearinghouse (NGC, guideline.gov) has announced it's Web site will not be available after July 16, 2018 because federal funding through AHRQ will no longer be available to support the NGC as of that date. AHRQ is receiving expressions of interest from stakeholders interested in carrying on NGC's work. It is not clear at this time, however, when or if NGC (or something like NGC) will be online again. In addition, AHRQ has not yet determined whether, or to what extent, the Agency would have an ongoing role if a stakeholder were to continue to operate the NGC. We will continue to post summaries of new and updated evidence-based clinical practice guidelines until July 2, 2018. For any questions, please contact This email address is being protected from spambots. You need JavaScript enabled to view it..

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08 April 2018

2018 UnivMaryland IxodesScapularisTickThe following excerpts are from University of Maryland, Dept. of Veterinary Medicine press release: A UMD researcher has uncovered a mechanism by which the bacteria that causes Lyme disease persists in the body and fights your early, innate immune responses. Dr. Utpal Pal, Professor in Veterinary Medicine, has been studying the Borrelia burgdorferi bacteria throughout his twelve years with UMD, and his work has already produced the protein marker used to identify this bacterial infection in the body. Now, Dr. Pal and his team have isolated a protein produced by the bacteria that disables one of the body’s first immune responses, giving insight into mechanisms that are largely not understood. He has also observed a never-before-seen phenomena demonstrating that even without this protein and with the immune system responding perfectly, the bacteria can spring back in the body weeks later.

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02 April 2018

2018 NYS Sen James SewardThe following excerpts are from New York State Senator James Seward's Press Release: ALBANY, 03/29/18 — State Senator James L. Seward (R/C/I/Ref-Oneonta) joined this week with his senate colleagues to call on the state to investigate the impact Lyme and tick-borne diseases (TBD) may have on mental health. The senate unanimously passed legislation (S.7171) co-sponsored by Senator Seward that would require the state to study the link between infectious diseases, blood-borne pathogens and mental illnesses. The bill is the first step in a process that could lead to a better understanding of the incredible impact these diseases can have on the overall health of New Yorkers.

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30 March 2018
LDA NEWS & UPDATES 
March 2018
FDA Approves Tests to Screen Blood supply for Babesia 
The U.S. Food and Drug Administration (FDA) has approved the first tests to screen human plasma and whole blood samples for the Babesia parasite species, Babesia Microti (B. Microti), the main species that causes infection in the United States. 
DoD TBD Research Program Announces Funding Opportunities for Researchers
The Department of Defense Tick-Borne Disease Research Program (TBDRP) is announcing its anticipated funding opportunities for fiscal year 2018 for researchers. Since there is a current Continuing Resolution, the Defense Appropriations bill has not been passed yet, so funds have not been appropriated for the DoD TBDRP. This is a preannouncement to allow researchers time to plan ideas for submission to the anticipated FY18 funding opportunities.
Mary Beth Pfeiffer Releases Lyme Book
Announcing the publication Mary Beth Pfeiffer's book - Lyme: The First Epidemic of Climate Change which documents the human contribution to the dangerous spread of Lyme disease to dozens of countries and multitudes of people. Pfeiffer is known for her dedicated coverage over the years with the Poughkeepsie Journal -- covering Lyme, TBD’s and the decades of controversy that has left patients without insurance coverage and life saving treatment options.
New Publications from LDA-Funded Research
The LDA provided funding to Alfredo Angeles-Boza, University of Connecticut, whose work with colleagues translated into three new publications which provide information that could benefit Lyme patients.
May Lyme Disease Awareness Events
May is Lyme Disease Awareness Month! These events, which sometimes start in March, help educate the public and raise funds for Lyme research. Click our calendar icon below to view events hosted by LDA's partners, members of LDAnet, LDA's umbrella organization. Keep checking back for new events. Click below for two conferences, each supported by an education grant from the LDA: In April, the 4th Annual Midcoast Lyme Disease Support & Education Conference at the Augusta Civic Center (Maine); and in May, the Colorado Tick-Borne Disease Awareness Association - Lyme & Other Tick-Borne Diseases: 3rd Rocky Mountain Forum. LDA also provided an education grant for Lyme Society, Inc.1st Annual Lyme and Tick-Borne Disease Conference - in May, Staten Island, NY.
 
 
Post Your State Lyme Awareness Proclamations Here
Many states and counties have taken steps to raise awareness regarding Lyme and tick-borne diseases. Declaring "May Lyme Awareness Month" is one move to help remind people spring is here, ticks are out, prevention & proper education are your best tools to staying healthy.
Proclamations are issued by governors and resolutions are adopted by the legislature. 
Click here to add a picture of your state or county proclamation/resolution so we can include it on our annual list.
888-366-6611 Toll Free Hot Line
 

LDA Grant Program

GrantScope 68kbThe LDA's grant program is divided into three categories: Research, Education, LymeAid 4 Kids grants.. Read More...

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Lyme Disease Association, Inc.
PO Box 1438, Jackson, NJ 08527 

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